Please welcome GRACE to the NARCOLEPSY: NOT ALONE campaign, who took this photo at the Everest Base Camp in Nepal. In her inspiring blog, she describes in her blog her journey as a woman with narcolepsy with cataplexy to reach the Everest Base Camp: “On paper you might think that a person with a diagnosis of Narcolepsy attempting…
Meet Collin and Conner, two friends in the 5th grade in Columbus, Mississippi. I’ve always loved thier NARCOLEPSY: NOT ALONE photo, but recently learned about the friendship behind the smiles. Collin was diagnosed with narcolepsy with cataplexy at age 8. Despite the challenges he faces, Collin has stayed active as a student and athlete. He…
This past year has been very tough for Daishia, age 11, who was recently diagnosed with narcolepsy with cataplexy. In addition to narcolepsy, she is also dealing with a seizure disorder, migraines and obstructive and central sleep apnea. “I wish I could take all her pain and struggles away and make things easier for her,” describes her…
Show your pride! I’m thrilled to unveil the new NARCOLEPSY: NOT ALONE Facebook Covers. Big thanks to Ms. Kayla Preston who created these awesome banners for our community. Kayla – you and your family’s support means the world to me. Join us in supporting the campaign today! 1. Download your favorite, save NNA photo to your desktop. 2. Log on to Facebook and…
The Norwegian Magazine SOMNUS recently featured our NARCOLEPSY: NOT ALONE campaign! What an exciting honor to share our inspiring international social media community with Norway. The NARCOLEPSY: NOT ALONE currently with over 1,200 photos from all 50 U.S. States and 44 countries around the world, including 6 awesome photos from Norway. Even though I can’t…
What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ALONE campaign blog posts. For me, the words “connect”, “badass” and “tears” stand out. I love that positive and negative experiences are captured here. No matter where you are on your journey, your feelings are valid and normal, its all part of the narcolepsy roller-coaster.…
On July 24, 2013, I launched the NARCOLEPSY: NOT ALONE campaign, unsure if anyone would join me. One year later, I can hardly believe the positive energy and enthusiasm supporting the campaign around the world. You’ve touched my heart beyond words, bringing countless smiles to my face and also tears of connection and joy. As…
“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not…
“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call…
Last week, I traveled to the Dominican Republic on vacation with my boyfriend. Knowing the Dominican Republic was not yet included in the NARCOLEPSY: NOT ALONE campaign, I was SO excited to personally add the 38th country to our amazing international photo series. In a rush to pack, I forgot my NARCOLEPSY: NOT ALONE paper…
